Meet The Kroeker’s

  

“February 6th 2012, we were blessed with the birth of our son Rylan, he was perfect to us. Always smiling and full of life. At 6 months old, Rylan was not meeting his growth milestones, he was barely sitting up, could not hold his bottle and was delayed. We started down a path to see if there was something physically wrong with him, we went to children’s hospital had his hips x-rayed, they ran all sorts of tests and nothing. He was normal. At a year old, he started having seizures, sometimes 2 or 3 a day. My husband and I never thought that this day would mark the start of a new journey we never planned on, which has brought many tears, frustrations, fear and so much joy. Rylan was diagnosed with epilepsy at the age of one, this was a hard pill to swallow. How could my perfect child suffer from such an agonizing disorder? At the age of 2 we participated in a genetic study to find out genetically the cause of his epilepsy and development delay. There was a 25% chance the geneticists would find the deletion in his DNA, we were lucky they did. However, I felt that although we had a diagnosis for his epilepsy this did not resolve any of the daily issues we faced. He was still having seizures, he was not walking, talking or developing at the same pace as a normal child. As a mother all you want to do is “fix” your child. One doctor told us, “if you want to help your child, give them as many interventions as you possibly can”. This completely resonated with me, it compelled me to educate myself on other disorders that could have, that could guide us thru our journey or offer us some support. Although Rylan, is generally a happy and social little boy, he suffers from many repetitive behaviors. He is also unable to articulate and communicate his thoughts, and wishes. I had read a bunch information about Autism, I saw so many similarities between his behaviors and mannerisms, which triggered me to push our pediatrician to get him tested. At 4 years old, Rylan was diagnosed with Autism on top of all his other medical conditions. Daily life is not easy, but it’s our life. I feel blessed that I have a son who has taught us so many lesions in life I never anticipated. We celebrate, we are adaptive, we tell each other we love each other every day. We embrace all the idiosyncrasies, we are kind. Rylan is perfect to us.”

 

 

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