In an effort to create a better understanding of Autism Spectrum Disorder, we have created this "Faces For Autism" blog. Here, you can share an in depth, no holds barred look into the day to day triumphs, struggles and real world stories not only from individuals with Autism but also you; the people in their lives that support them.
Every face is a different story and we would like to encourage YOU to send us yours.
This week we are going to do something a little different and share two entries sent at separate times from the parents of special young man Mr. Landon Weir.
Big thank you to both Sean, Michealah an big sis Belle Weir for sharing your Autism story!
I knew Landon was different. When he was 8 months old and Sean was working 2 full time jobs and I did daycare through my maturity leave. Landon would sleep for a hour and scream for 2. Everyone said colic. I knew he was different. Landon would jump so violently in his jumperoo that Fisher Price had to send me a new one because my 9 month old snapped the springs. I knew he was different. He would rock his crib across his room so when I went to get him in the morning it was blocking the door and his big sister couldn't sleep in there with him. I knew he was different. He would bang his head against the wall so hard that to this day at 6 he has scars, the walls would be bloody and he would still be going, I would run in to stop him. My neighbours thought a water pipe was constantly bursting he was hitting his head so hard. I knew was different.
He wasn't talking at 2. Isabelle, his big sister was his constant interpreter. Telling us all what his needs were. As a mom, that was my heartbreak. I couldn't understand my child. What mother can't understand?
I would cry, and he would stand and stare. It destroyed me.
Finally at 3, I had a family friend say, you need to look at Autism.
My unspoken fear, I had seen the tip toeing walk, the stemming, no eye contact, no emotion attachment, I researched it. I knew. And I was fu*cking scared.
Was my marriage going to fall apart? Was Landon ever going to talk, learn, laugh? Know joy? My baby boy.
First, telling your partner in EVERYTHING that you think your child is battling adversity is one of the HARDEST things I have ever done in my life. Up to this point, my husband thought that Landon was just not as a fast learner as his sister. Sitting down and pointing it all out, then the appointments, the test, and the the results.
I remember looking up the divorce rate, and memorizing it(I was afraid and it was something else to focus on). So here we are. We get in the car, our son has just been diagnosed with autism and we are gutted. My husband more so. He knew our son was battling something. But he was sure I was overreacting and anyone that knows me knows he's usually right😉. I look over and say " Do you you the divorce rate for couples with special needs children?" Sean look at me and a look of anger, then amusement crosses his face and he replies " No, but should we just get one? This is a shit day and you seem to have all the answers"
The car was quiet for a good minute, and then as we always do. We laughed. We pulled our crap together and we laughed.
Therapy started, and so did Landon's vocabulary and personality.
One of the first things he clearly said was "I just love you daddy"
Our life has never been the same. Some days, I'm scared. Most days, we are a normal crazy family of four.
I can tell you 3 years later, I have no idea what the divorce rate of marriages with special needs children is❤
Hello my name is Sean and I am married to Michealah we have two beautiful children Isabelle 8 and Landon 6. Our son Landon was diagnosed at the age of 3... we had a birthday party at a fun park in Langley after we were informed of his diagnosis of high functioning autism. I remember siting at the top of the play ground watching Landon play with the kids and a small boy touched my cheek he couldn't speak and his mom said that he has autism and doesn't speak yet I didn't know what to say except that Landon just received his diagnosis today and the lady began talking and I didn't hear a word she said I just watched my son playing happy being 3. I was confused at doctor appointments hearing doctors talk and friends that would read on the internet and try to tell us what to do. Nothing made sense.
By chance I met James through a contract job and I read up on BFA. I started talking to James met a few other family's. What was going on with Lando started to make sense. Not doctor talk but just two guys chatting, which led me to volunteer with bfa events, heck I even got the "Anchors for Autism' tattoo on my rib cage!
Life with Landon is not always sunshine and rainbows or doom and gloom, It's different. We've had the stares and comments and at times it's been really tough not to lash out. We've had restaurant staff call him the dreaded R word which the restaurant actually handled respectfully and at the end of the day people will think what they want. It is strange how autism is so wide spread and thru something as simple as wearing a BFA T-shirt it can start a conversation that can either help people walk away with more insight on autism and may even get involved. Or simply carry on on their merry way.
Want your story to be featured on the blog?
All you gotta do is email us firstname.lastname@example.org
Each week we will feature a new face and story at www.bikersforautism.com/blog/faces-for-autism
Thanks to our project leader Mercede Campbell
Check her out at www.mercederain.com